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Gordon and Marjory
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36 comments:
hey,
thanks for linking to my blogs, I'm honored!
Lor (abigail)
Dear Marjory and Gordon,
I'm writing to ask if you will post an announcement on Beating Breast Cancer about the new book, TURNING HEADS, which is helping change the way women cope with chemotherapy. The announcement is below.
I'd also like to offer you a free review copy of the book -- your support is important to us. Just let me know where to mail the book.
With Thanks for Your Consideration,
Steve O'Keefe for Press On Regardless
Phone 504-342-4806 Fax 504-342-4157
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
ANNOUNCEMENT:
Check out the pictures of beautiful, bald women from the book, "TURNING HEADS: Portraits of Grace, Inspiration, And Possibilities" at:
http://tinyurl.com/l9enb
TURNING HEADS contains pictures of women who have lost their hair due to chemotherapy. It features some of the best fashion and news photographers in the world -- including four Pulitzer Prize winners.
Many women diagnosed with cancer fear losing their hair more than losing their lives. This fear can prevent them from getting proper treatment.
Filmaker and cancer survivor Jackson Hunsicker spent five years assembling these inspiring images. "The women in these pictures are out in the world, doing things, getting on with their lives while they recover," says Hunsicker. "They teach us all a much needed lesson that bald is a look you can live with."
Dear Marjory and Gordon:
Here is a link to a blog essay on the use of storytelling in healing from breast cancer. I thought you might be interested:
http://storyteller-and-listener.blog-city.com/sharon_bray.htm
Holly Stevens, editor, The Storyteller and the Listener Online
(I've been living with breast cancer, now in stage four, since 1992.)
Marjory and Gordon:
Here is a link to a blog essay on the use of storytelling in healing from breast cancer. I thought you might be interested:
http://storyteller-and-listener.blog-city.com/
sharon_bray.htm
Holly Stevens, editor, The Storyteller and the Listener Online
(I've been living with breast cancer, now in stage four, since 1992.)
Dear Marjory and Gordon,
I too am a nurse with a daughter Ally. Yours is the first blog site I have ever read. I am living in the US east coast. I was diagnosed Feb 2005 with stage IIIC. >5cm and 15 of 22 positive nodes. I opted for bilateral mastectomies with reconstruction. I felt if I was lucky enough to survive this once I never wanted to have to worry the other breast was developing something so massive and undetected too. No regrets. I have had aggressive dose dense ACT and a full 12 months of weekly herceptin (I am grateful for the timing of my diagnosis with the acceptance of herceptin and feel I owe my life too it and a superb oncologist who went out on some limbs for me). An implanted port has preserved my veins and is ready to come out soon. Radiation is complete and my hair is back as thick curls. Quite a shocker.I too have chosen a dairy free diet thanks to The Plante Program book sent to me by a co-worker. I bought a beautiful wig which collected dust along with the cute hats and bandanas. My very supportive husband shaved my head as the clumps started to come out and I never looked back. I was a little nervous a first going to work but the patients and staff were so very wonderful and often commented on how strikingly attractive it was. Never realized how smooth legs can be until you don't have to shave them. Life is now back to normal and feeling strong. I have hope for the future and try not to listen to statistics.I cried often but laughed hard too and learned a great deal about myself. Keep your chin up, sense of humor, ask for help when you need it and know you can do anything you have to. Prayers to you and your family.
Paula
prvanurse@yahoo.com
Dear Marjory
My name is Susie Faber and I am a two-year survivor of breast cancer, have had alopecia since the age of four and know what it is like not having hair.
I wore custom wigs for several years but found them extremely hot after several hours. The double sided tape tore my skin several times during removal so I opted for my trusty old ball cap.
I hope you have better luck than I did.
Another woman who also has alopecia, and I started designing and making our own caps and hats since we had not found anything we liked in the stores.
Take a look at what we offer at www.stylishnoggins.com and let me know what you think.
We have stretcy velveteen, cotton and camouflage in many colors.
For children, parents can order hats with fun appliques.
I wish you and your family good health, and a cure.
Sincerely
Susie Faber
Hi Marjory and Gordon,
First and foremost I would just like to say that I think your blog is amazing. It's so great that you are sticking together during what must be a really difficult time. But hang in there because things will be fine.
I thought you would find this interesting because in honor of October being National Breast Cancer Awareness Month, AOL launched an AIMpage devoted to breast cancer and all those who are affected by it. There's a section where people can share stories and feelings. And there is also a documentary filmed by a TV journalist who was diagnosed with breast cancer, so she turned the cameras on herself documenting her entire journey. It's an incredibly touching story.
Anyway, I just thought you would be interested, so please take a moment and check it out here:
http://www.aimpages.com/thediariesfilm/profile.html?ncid=AOLHTH00050000000001
It would be great if you could post about it in your blog for your readers to see as well or maybe add it to your blog roll?
Please let me know if you have any questions, comments, feedback, etc. Thank you so much and stay strong!
Take Care,
Andie
GetLifeNews@aol.com
Hi there my name is Alison Caiola and I am a Certified Hypnotherapist who works with breast cancer patients and survivors across the country. My sessions include healing visualizations, stress, anxiety and pain management techniques. I also sell CDS & Downloads. I also have a healing guided imagery CD that should be used during chemotherapy. I would like to exchange links with you. My website is www.hypnosishealthcds.com
and my email is info@hypnosishealthcds.com Hope to hear from you soon!
I have a seroma that formed from high-rate dose radiation. 3 weeks ago it became infected and there is no fluid to drain, trust me they tried 5 times. It is swolen again and I am on 2nd round of Keflex 500mg 4 times a day. I am going tomorrow for follow-up mammogram and appointment with Radiologist Oncologist. Can this be a seroma with nothing to drain? It is red, swollen and hot to the touch.
Hi Marjory and Gordon,
I wanted to let you know that my site (mdjunction) just aired an online support group for breast cancer.
http://www.mdjunction.com/breast-cancer
(we are on the way to become a healthcare community and center for online support groups - all free!).
would love to hear your comments and feedback.
(you can contact me by the contact us)
thanks,
roy
Hi -- You have a great blog. Thanks for sharing. I wanted to let you know about a new online boutique I started. We are giving 50% of our profits to FORCE (Facing our Risk of Cancer Empowered) www.facingourrisk.org and using our site to raise awareness of hereditary breast and ovarian cancers. The site is in memory of my Mom who died last October and in support of all people who are BRCA+ or have a family history. Would love a mention. You can see our site at www.annettesangels.net or e-mail me at barbpf@earthlink.net.
Dear Marjory and Gordon:
My name is Thomas Brown. I am the author of Men Bleed Too: A Compelling Story About One Man's Struggle to Help His Wife Fight Breast Cancer. My website is www.thomasbrownbooks.com. I am also featured on MyBreastCancerNetwork.com at http://www.healthcentral.com/breast-cancer/breast-cancer-husbands.html
Please take a moment to view my site and review the book to see if it would be appropriate to promote it to your audience. My email address is cav@kc.rr.com
Hi Marjory,
I was diagnosed with breast cancer in April 2004. I completed my treatment on the 31 Dec that year and started the new year afresh. I started taking Arimidex in the January also for a 5 year period. My joints started aching after a few months. By mid year my elbows ached so badly I decided to stop the medication. The pain stopped within days. I then changed my medication to Nolvadex and have had no trouble at all. Thanks for your updates. Hang in there and good luck.
My breast cancer started out in January 2007 with a lump and pain. Also swelling and a tremendous feeling of heaviness. At first I was diagonsed with a breast cyst. A mammogram and sonogram read by the Doctor at our Womens Center said right away it was a fluid filled cyst. After weeks of dealing with the burning and heaviness I called my medical doctor back. He referred me to a surgeon to have it aspirated. The first visit I chickened out. He confirmed from looking at my films it was a cyst. Was not ready for needle sticking that day so told him if it was just a cyst I'd deal with it. After 2 months of burning and stinging could not deal any longer. The surgeon stuck me nothing came out so he set up an appointment at our hospital to have a needle guided biopsy. I believe 5 biopsies were taken.
The next afternoon my surgeons
office calls and sets up a time
the next day to go over the results. Of course the Pathology report has Poorly Differentiated Infiltrating Ductal Carcinoma
Within 5 days I go in for a mastectomy. The doctor tells me it was a lot larger than originally
thought. He removes 15-17 lymph nodes,no cancer was found in them
but he said a lot were enlarged. I live in N.C. and he has sent off
the mass removed to Sloane Kettering in N.Y. So far I have not
been told I have inflammatory breast cancer but after reading your site about the symptoms that
is sure what it sounds like. I thank you for putting your story
online and all the valuable info.
I truly wish Marjory the best and you also Gordon. I go to the oncologist the middle of this month
maybe will hear then if its the inflammatory cancer. Take Care and thanks again for all the info.
Lynn W.
Hello!
I'm writing to you on behalf of my fiancee (who isn't very computer savvy), to try to obtain sponsors for her walk in the upcoming "Susan Korman 60 mile / 3 day walk for a cure", being held in Philadelphia, Pa. this October.
Please understand, I'm not asking you personally for a donation, but just a blog-post about the walk, (there are several being held nationwide, although I'm sure your aware of the event), with a link to her donation page.
In case you don't know how the "3 Day Walk" donation system works, we do not collect any of the money, it all goes straight to the foundation through their website.
She really wants to do this, but honestly she's not getting enough support to qualify for the event. There's a $2500. minimum to actually walk in the event, so I'm trying to help her any way I can think of.
Reference info about the walk:
http://07.the3day.org/site/pp.asp?c=pmL6JnO8KzE&b=2182503
Marian's Link:
http://www.the3day.org/philadelphia07/marianlesher
Thanks for your time!
Seth
mailto:sethwrks@prodigy.net
Hi there, I was wondering if you knew where I could access free photo's of bald woman. I am helping a hospice put together a booklet on hair care and wanted to put images of woman who had suffered from hair loss to show that it doesnt have to be scarey and that woman can look just as beautiful without hair.
They would also appear on a website too
Can anyone help?
Thanks,
Jacqui
jacquifarnell@gmail.com
INVITATION: A Bloggers-Only Telephone News Conference on Breast Cancer Prevention with Breast Cancer Fund Executive Director Jeanne Rizzo and environmental health expert Dr. Janet Gray
Dear Marjory and Gordon,
I’m helping to invite bloggers to a blogger-only news conference with two breast cancer prevention experts. If it's too late for you from over there send me your questions and I'll relay them and credit you and the blog.
I’m sure that you’ll want to talk to these remarkable researchers, particularly since they specialize in the prevention and environmental causes of the disease. That’s especially important since here in the US, a woman’s lifetime risk of breast cancer has nearly tripled in just 40 years! In light of that, and of the fact that just 10% of women with breast cancer have genetic markers for the disease and almost half have no known risk factors, what we eat, and what we know about the environmental impact on cancer really matters. I know you’ll find it useful and hope you can join us.
Many of your readers want new ways to understand cancer and are very prevention-oriented. Because of that interest, Pure Prevention, a joint effort of LUNA Bar and THE Breast Cancer Fund, invites you to participate in a live bloggers-only telephone news conference with two nationally recognized environmental health experts on environmental causes of breast cancer and tips for women in reducing their risk of the disease. They have much to offer on how to best keep cancer at bay. The call takes place Tuesday October 2 at 7 PM EDT (4 PM on the west coast)
On the phone with you will be the Breast Cancer Fund’s Executive Director Jeanne Rizzo, RN, a nationally acknowledged leader in the field. Under her leaders, the Breast Cancer Fund has been a leader on both education and advocacy, including publication of several precedent-setting public health initiatives. The organization published the landmark report State of the Evidence: What is the Connection between the Environment and Breast Cancer?, a ground-breaking report now in its fourth edition. Joining her will be environmental health expert Dr. Janet Gray, editor of the Breast Cancer Fund’s newest State of the Evidence report and Professor of Psychology and Director of the Program in Science, Technology and Society at Vassar College
We hope you’ll join us. As always, this call is informational; you are under no obligation to write about the conversation unless you find it useful.
Again, here are the details:
WHAT: Bloggers-only Breast Cancer Prevention News Conference with Breast Cancer Fund Executive Director Jeanne Rizzo and environmental health expert Dr. Janet Gray
WHEN Tuesday October 2 at 7 PM EDT (4 PM on the west coast)
WHERE: Conference Call – number to be provided
WHY: To discuss developments and answer questions on breast cancer prevention and environmental factors in breast cancer.
We will also provide an audio recording/podcast after the conference for you to link to if you wish.
Please RSVP, either by email or telephone (see below) when you know if this is an opportunity that interests you.
Cindy
Cynthia Samuels
202-236-1844 [m]
202-726-0435 [o]
202-726-2124 [fx]
About our experts:
Janet Gray, Ph.D.
Extolled by Vogue magazine for her work on the interactive CD-ROM entitled “Environmental Risks and Breast Cancer,” Professor of Psychology and Director of the Program in Science, Technology and Society (STS) at Vassar College and a scientific reviewer of the Breast Cancer Fund’s report, “State of the Evidence: What is the Connection Between Breast Cancer and the Environment?”, Dr. Janet Gray has created interactive access to the often complicated world of environmental breast cancer prevention. Working with a team of Vassar students and technical professionals, Janet’s two-year project combines scientific data from 200 independent studies in an easy-to-use CD-ROM outlining the links between chemical exposures and breast cancer. Since its June 2006 release, requests for the CD-ROM have come in from all over the United States and 58 foreign countries. In 2007, with her students at her side, Dr. Gray received a Breast Cancer Fund Heroes Award for her work successfully communicating the message of breast cancer prevention to our communities.
About Jeanne Rizzo, R.N. Executive Director, Breast Cancer Fund
Jeanne Rizzo is executive director of the Breast Cancer Fund, a national environmental health organization whose mission is to identify—and advocate for elimination of—environmental and other preventable causes of the disease.
Under Ms. Rizzo’s leadership, the Breast Cancer Fund launched several precedent-setting public health initiatives. The organization published the landmark report State of the Evidence: What is the Connection between the Environment and Breast Cancer?, now in its fourth (2006) edition, convened California Senate and Assembly legislative hearings on breast cancer and the environment, and initiated the first-ever International Summit on Breast Cancer and the Environment. As a leading member of the Campaign for Safe Cosmetics, the Breast Cancer Fund has successfully pressured major cosmetics companies to reformulate their products to eliminate certain carcinogens and reproductive toxins.
In 2005, California Gov. Arnold Schwarzenegger signed two Breast Cancer Fund-supported bills, including SB 484, the Safe Cosmetics Act, which will require cosmetic companies to report to the state the use of chemicals that are linked to cancer or birth defects. The organization sponsored California legislation to create a statewide biomonitoring program and led efforts to secure passage of the nation’s first Precautionary Principle ordinance.
Ms. Rizzo’s vision has been instrumental in the Breast Cancer Fund becoming a moving force to end the epidemic of breast cancer. A longtime women’s health advocate, Ms. Rizzo’s commitment to progressive causes began during her career as a registered nurse and continued through her years as a music, film and theatre producer. Before joining the Breast Cancer Fund as executive director, Ms. Rizzo was a recipient of the organization’s Bella Abzug Advocacy Award for producing the award-winning film Climb Against the Odds. In 2005, she received the KQED/Gap “Local Heroes” award and was named one of 25 Environmental Champions for 2005 by EnvironDesign Journal.
About the Pure Prevention Campaign
Pure Prevention is a campaign to educate women about the environmental causes of breast cancer and empower them to live actively, healthy and well. Only 1 in 10 women who have breast cancer have a genetic history of the disease. What women put on and in their bodies can make the difference. By learning the facts, we can make smart choices about the products we use every day.
Pure Prevention has five easy, everyday tips for making pure choices to reduce the risk of breast cancer. Our 5 Tips include: Create a Healthy Home, Eat Smart, Choose Safe Cosmetics, Get Outside, and Join the Campaign to help us spread the word about prevention.
Through survey research conducted by the Breast Cancer Fund and LUNA Bar, we learned that very few women are aware that only 10 percent of breast cancer cases are a result of genetic history and as many as half of all breast cancers occur in women who have no known risk factors. With over 200,000 American women to be diagnosed with breast cancer this year, it is crucial to expand the conversation about prevention.
Hi Marjory,
I found your blog today while searching for Herceptin stories since I'm on my 8th treatment -(2nd post chemo) and I've had some weird side effects :). I started a blog in March to journal my journey as well http://audraswhoknew.blogspot.com/, but wanted to let you know that I appreciate the time you've spent journaling yours. I have the same trepidation when folks ask me if I'm happy to be done...I'd be happier to be so done that I didn't have to DO anything else :).
Keep up the good work and best wishes!
Hi Marjory &
Gordon,
I’d like to introduce to you to and get the word out on two-time cancer survivor and founder of Cancer101 (www.cancer101.org), Monica Knoll.
Cancer 101, an innovative charity, was inspired by Monica Knoll’s experience with a mission to help people with breast cancer and care givers take charge of their cancer diagnosis by providing them with a plan of attack, organizational tools and access to important resources.
The BreastCANCER101 Ten Year Planner was created to organize, help empower and take control of a cancer diagnosis. The plastic folder arrives in a matching five-pocket accordion folder. The three-ring binder comes with 11 tabs that includes:
• Questions to ask your doctor by People Living with Cancer
• Ten-year Calendar Planner
• Notes (lined paper)
• Address book and business card holder
• Medical history and appointment results
• Medical bill ledger and insurance conversation results
• American Cancer Society’s Breast Cancer Dictionary
• What is a Clinical Trial? By the Coalition of Cancer Cooperative Groups
• Recommended websites and national resources
• Non-medical advice from survivors and C101
The folder is built to house pathology reports, research, insurance paperwork, outstanding bills and hospital/nonprofit information.
NYC and tristate residents receive an additional three tabs with:
• The C101 Where-to-Get-it-Guide: 52 pages of support services, wig/prosthesis/lymphedema shops and much more
• Zagats Survey’s list of Heath and Natural Food Resources
• Manhattan map/resource tracker and MTA bus and subway maps
This product is simply amazing and was created by a woman who sincerely cares for those who are affected by this terrible disease.
I wish everyone a happy and healthy year.
All the best,
Danielle
danielle@lawlormediagroup.com
Hi Marjory and Gordon,
First of all, your site is doing a wonderful service for cancer victims and I commend you for putting such a good resource out there...
I write to you because I am interested in purchasing a link on your site. Please let me know if you are interested @ voguewigsjl@gmail.com
thanks and keep up the great work!
Jennifer
Hi Marjorie,
I've noticed that you have helped raise funds for breast cancer awareness. Would you be interested in having a link on your site to here:
http://www.servenation.com/cards/3139
1-2% of purchases will go toward providing mammograms for women who are not able to afford them.
If you think this will interest your readers, please write to me at ljacobs@psfc.com
Thanks, Lindsey
Hello!
I found your blog while looking up resources for breast cancer patients, and thought you might be interested in a woman who's taken a pretty unique path in her own cancer battle. Meg Gaffney is a nurse, and when she was diagnosed with breast cancer, she decided to skip chemotherapy and radiation, and go right to a bilateral mastectomy. But when her plastic surgeon recommended a skin graft surgery to build up new nipples, she decided to incorporate art into her own personal healing process.
For Meg, that means getting nipples tattooed onto her body instead of the graft surgery, and now -- after months of searching for an artist willing to take on her challenge -- she's about to get the work done!
We're 8 parts into a documentary on Meg, which is featured on GrowingBolder.com. I'd love for you to check it out and let me know what you think!
http://growingbolder.com/media/health/cancer/confronting-cancer-part-8-181742.html
Meg is dynamic, creative, and completely committed to ridding the world of cancer, and her spirit is contagious.
Thanks for your time, and best luck in your own journey!
Katy Widrick
Executive Producer, GrowingBolder.com
katy@growingbolder.com
407-362-8237
hi,
i read one of your articles on ezinearticles, which brought me to your site.
I am in the process of puting together an offline book on breast cancer and its treatments and am looking for articles to include.
Hence i am seeking your permission to include any / all of your relevant articles in my new book.
Naturally i will include your website details and credits with each article.
Please email at londonhere777@aol.com to confirm that this would be ok.
Many thanks and i hope to hear from you soon
Andrew Rother
Breast Cancer Symposium 2008
Direct anti-tumor and anti-vascular effects were studied of Tykerb, Nexavar and Avastin in fresh biopsy specimens of breast cancer and presented at the American Society of Clinical Oncology Breast Cancer Symposium on September 5, 2008.
While the other clinically-available 'nib' drugs have been shown to have anti-vascular activity, anti-vascular activity of Tykerb has not been previously reported.
Angiogenesis studies are limited by the clinical relevance of laboratory model systems. They don't do "real world" studies under "real world" conditions. Patient outcomes need to be reported in real-time, so patients and cancer physicians can learn immediately if and how patients are benefiting from new drug therapies.
Cell culture detection of microvascular cell death in clinical specimens of human neoplasms and peripheral blood can identify the activity of both single drugs and combinations of drugs at the level of individual patients with individual cancers. It works by measuring drug effects (real-time) upon endothelial cells which make up blood vessels.
Drugs like Avastin had striking anti-microvascular effects but minimal anti-tumor effects. Tarceva and Gleevec had mixed antitumor and anti-microvascular effects. Anti-microvascular effects of Tarceva and Iressa were equal to those of Sutent and Nexavar. Anti-microvascular additivity was observed between Avastin and other drugs on an individual basis.
Conclusions of the study had shown that Tykerb has antivascular activity superior to that of Nexavar. Avastin + Tykerb may be the first clinically-exploitable antivascular drug combination. High dose, intermittent 'bolus' schedules of Tykerb to coincide with Avastin administration may be clinically advantageous, even in HER2-negative tumors.
The system utilized for the study was a functional profiling assay, which may be used to individualize antivascular therapy. It can be adapted for simple, inexpensive and sensitive/specific detection of tissue and circulating microvascular cells in a variety of neoplastic and non-neoplastic conditions, for drug development, and individualized cancer treatment.
The cell-based assay can accurately sort drugs into categories of above average probability of providing clinical benefit on one hand and below average probability of providing clinical benefit on the other hand, based both on tumor response and patient survival.
Poster: http://www.weisenthal.org/Weisenthal_ASCO.pdf
Source: Weisenthal Cancer Group
The Breast Cancer Symposium 2008
Direct anti-tumor and anti-vascular effects were studied of Tykerb, Nexavar and Avastin in fresh biopsy specimens of breast cancer and presented at the American Society of Clinical Oncology Breast Cancer Symposium on September 5, 2008.
While the other clinically-available 'nib' drugs have been shown to have anti-vascular activity, anti-vascular activity of Tykerb has not been previously reported.
Angiogenesis studies are limited by the clinical relevance of laboratory model systems. They don't do "real world" studies under "real world" conditions. Patient outcomes need to be reported in real-time, so patients and cancer physicians can learn immediately if and how patients are benefiting from new drug therapies.
Cell culture detection of microvascular cell death in clinical specimens of human neoplasms and peripheral blood can identify the activity of both single drugs and combinations of drugs at the level of individual patients with individual cancers. It works by measuring drug effects (real-time) upon endothelial cells which make up blood vessels.
Drugs like Avastin had striking anti-microvascular effects but minimal anti-tumor effects. Tarceva and Gleevec had mixed antitumor and anti-microvascular effects. Anti-microvascular effects of Tarceva and Iressa were equal to those of Sutent and Nexavar. Anti-microvascular additivity was observed between Avastin and other drugs on an individual basis.
Conclusions of the study had shown that Tykerb has antivascular activity superior to that of Nexavar. Avastin + Tykerb may be the first clinically-exploitable antivascular drug combination. High dose, intermittent 'bolus' schedules of Tykerb to coincide with Avastin administration may be clinically advantageous, even in HER2-negative tumors.
The system utilized for the study was a functional profiling assay, which may be used to individualize antivascular therapy. It can be adapted for simple, inexpensive and sensitive/specific detection of tissue and circulating microvascular cells in a variety of neoplastic and non-neoplastic conditions, for drug development, and individualized cancer treatment.
The cell-based assay can accurately sort drugs into categories of above average probability of providing clinical benefit on one hand and below average probability of providing clinical benefit on the other hand, based both on tumor response and patient survival.
Poster: http://www.weisenthal.org/Weisenthal_ASCO.pdf
Source: Weisenthal Cancer Group
Hi Marjory and Gordon,
I hope you are both well! I am working with Cancer Research UK and am promoting their new viral video that I thought may be of interest to you.
CRUK is taking a new slant breast cancer awareness and has just released a really funny viral video
(for Breast Cancer Awareness Month which runs throughout October), the aim of which is to get women to check their breasts more regularly. In short, the video features a woman explaining how to check breasts properly, the twist being that her assistant is a beautiful and obliging male model! Definitely something for the ladies!
Here is the link to their ‘Breast Awareness Guy’ microsite: http://www.breastawarenessguy.org/.If you'd like to recieve the embedded code, or more information, please do not hesitate to email me at zaireen.iskandar@immediatefuture.co.uk
I hope to hear from you soon,
Regards,
Zaireen
Hi-I just came across your blog and I think I have a product that your readers may be interested in.
My company, Madcapz, manufactures and sells women's and kids' colorful patterned baseball caps that have become hugely popular with chemo patients and others suffering hair loss from other medical conditions. We have been told by so many customers that our caps are so uplifting!
Please take a look at our fun unique caps at www.madcapz.net and let me know if you might be interested in linking.
Thanks so much and best wishes, Carrie Bell
Owner, Madcapz
info@madcapz.net
www.madcapz.net
Hi Marjory and Gordon,
I suppose breast cysts can happen at any age, but from what I have been reading on sites, they occue more commonly when you are in your menses. I had a total hysterectomy about 12 year ago. I do take 1 mg of estrodial. I stay away from progestrone though. My mom had breast CA at 39 and past away at 54. Anyway, I noticed a twinge of pain in the shower last week in my right breast it was focal pain and I did find a lump. It's probably a cyst, I don't drink much caffeine, and I think the caffeine story is related to menses too, isn't it? I feel like beings I worry alot and my insurance isn't real good, and I'll have to pay for the ultrasound myself ( I pay for the first 2500.00 then my insurance kicks in it's a 2500.00 dedutible) I should probably relax and see if it goes away in a few months. What do you think? I got my mammogram just 5 months ago or so. I've been getting them every year since I was 25 because of my mom's history. Do you think I should run to my OB-GYN now and tell her or wait just a bit? Thank you.
My Wife Had MRM on 1st December by breast Surgeon. She had drain for 111 days. Since the drain site was inflamed, Surgeon removed it out. Since than she gets serous dischage and needs to be removed( Drain) and the quantity is around 250 cc every alternate day. Today she had around 190 cc. I am worried how many more days she will have to go for drainage or has it become permanent complication?
Hello Thank you for responding.My left breast especially around the nipple and colored area (I think that is the Areola)is painful to the touch, I cant even stand nothing to bumpt against it, this is only on the left breast. It aches constantly but mostly when touched. There is no redness or bumpiness and I feel no lump from what I check!--Pretty scared :(
Dear Marjory and Gordon,
I was so glad to discover your blog. I've been reading some of your older posts and I'm glad you talked about (Marjory) the drains you had after your mastectomy. My mother is recovering from breast cancer and she really hated those drains and didn't anticipate them. Mom seems to think that doctors and nurses spoon feed information with a diagnosis such as this- so as not to overwhelm the patient. I documented her journey via video for the website I work for, called icyou. She's also a nurse, so I thought I would share this link with you.
http://www.icyou.com/channel/see-jane-heal-breast-cancer-channel
I look forward to reading more. I'm going to add this blog to our blog roll. All the best, Rebecca
Hey. I am 30 years ols and just had a bilateral mastectomy on 2-11-09. I was impressed as to how god I thought things were going until yesterday when my incision started having drainage. I went back to my plastic surgeon who put in tissue expanders immediately after my mastectomy. He made a small incision in my incision to allow for draining. He suggested that maybe my body wasnt absorbing enough of the fluid and this would hopefully help. I am wondering, is there anything else I could do... any way to help my body absorb faster? My surgeon says if it builds up and becomes infected he will have to remove my tissue expander... I am so worried. I wanted to beat this and recover quickly with some normal appearance of breasts and the thought of removing them and going through a few more sugeries scares me to death. Is there a home remedy to speed this process? Any foods which might aid in absorbtion? Any advice would be greatly appreciated. I am so new to this and thought someone might have some helpful advice. Please respond. Thanks, Kim Cloer Email - kimberlycloer@ymail.com
Hi Marjory and Gordon,
I wanted to let you know about a new campaign designed by adult contemporary/jazz musician Anders Holst to raise money towards a cure for breast cancer. During the entire month of March, all proceeds from the iTunes sales of his single “All About Soul” will be donated to the Greater New York City Affiliate of Susan G. Komen For The Cure ®. After seeing two dear lifelong friends suffer through the fight against the tenacious disease, Anders became inspired to take action. I’d love to get in touch with you regarding this, you can contact me at brettc@twoshepsthatpass.com.
Hi Marjory and Gordon,
My name is Laura Boitano, and I am an undergraduate at Georgetown University. I am conducting my senior thesis research study which is looking at yoga and its effects on the immune status of breast cancer patients. I am currently recruiting breast cancer patients for the yoga and non-yoga group. I’ve received IRB approval for the study. This is a survey type study, so bi-weekly I will ask patients several questions about your health. (That shouldn’t take more than 5 minutes.) Patients don’t have to be in the DC area to participate; individuals may come from across the country. I was wondering if you could help me recruit patients by putting something about the study in your blog. Please let me know if you would be willing to do so. Also, there was an article you may want to read written about me and the study: http://www.yogaactivist.org/?p=188. I would love to tell you more details about the study. Please e-mail me back at laura.boitano@gmail.com.
Thanks,
Laura Boitano
Hi there
I am currently working on behalf of Wilkinson Sword who are supporting Movember the charity which is trying to literally change the face of men’s health and raise awareness of prostate cancer – the most common cancer in men.
http://www.lovethemo.co.uk/movember
We are trying to raise support for the charity and the Men who are growing a moustache through out November. Currently we are trying to get people (including women) to adopt a moustache on their Facebook or Twitter profile http://www.lovethemo.co.uk/plan-your-mo We really want women to get involved with this so they can show their support for the men.
I realise your site deals with Breast Cancer and not prostate cancer however I thought I would get in contact as we really wanted to encourage the element of support – men supporting women and women supporting men. I have featured your site in a blog post on breast cancer here http://www.lovethemo.co.uk/blog/which-side-of-the-universe/
It would be fantastic if you would be able to get your community involved either on your site or simply giving us a tweet.
We think it’s a great example of an interesting and fun charity campaign so if you are able to help us spread the word for this incredibly important cause then please do let us know.
Thanks for your time and help
Stacey
Stacey Beattie
stacey.beattie@trimediauk.com
In my own personal quest to spread awareness about breast cancer and specifically find creative ways to remind women to get their annual mammogram in order to benefit from early detection of potential cancerous cells, I created a Web site called freepinkribbon.com.
My Web site invites other women interested in spreading awareness to cut pink ribbons and send them to me, and in return I send pink ribbons to anyone who wants one, as well as anyone who wants one sent to the important women in their life.
My mother survived breast cancer over twenty years ago when awareness on the importance of mammograms was not as wide-spread. This is a very personal Web site for me and I hope to contribute to the greater mission of encouraging women to get regular mammograms to possibly save themselves from the struggles my mother faced.
I would be very appreciative if you were to allow a link to my Web site on your site: http://www.freepinkribbon.com
Also, if you send me your address, I will be happy to send you a ribbon :)
I have a small banner available for Web sites to post on theirs as well and that can be found on the home page of my Web site. Thank you very much for your consideration, and for taking the time to maintain such an informative site.
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